Back to the bad old days

A family celebration in Jersey was ruined by my experience at the hands of the EasyJet handling agent. I use a lightweight manual wheelchair and on arrival in the island from Gatwick, it had been brought to the aircraft door as expected. With a handler’s help we negotiated the boarding ramp with ease and my wife, daughter and I were soon joining the Covid Queue. A seamless procedure – one I have come to expect during many flights this century.

Our return flight provided a different experience. Before pre-boarding EZY896 (13/9/21), I was informed I would not be permitted to use my own chair to scale the ramp. Instead, I would have to transfer to one of their devices, then again to an aisle chair to reach my seat.

The chair waiting for me was totally unsuitable. A flimsy affair, the armrests were fixed making a transfer awkward at best. The footrest was tiny, offering little room (let alone support) for my size 8 paralysed feet. It looked more like a coal-sack trolley and I refused to be loaded onto it. I explained that my own chair had proved perfectly adequate four days previously.

Initially the handler acquiesced but by the time I moved onto the ramp, he had obviously been rebriefed. We argued but I was conscious that my fellow passengers would not be on my side for long. With difficulty I managed to transfer and my feet immediately fell off the rest, one becoming trapped underneath. I continued to argue with the handler (a man in his 60s with a grey beard and a badly-fitted face mask) until at the aircraft door he lost his temper. He thrust his face into mine, wagged his finger and threatened to have me removed from the flight. (The exchange was witnessed by the flight crew. He said I had been rude; I had told him to shut up.)

I was now furious. The handler’s complete lack of empathy reminded me of behaviour I encountered when I was newly disabled – 30+ years ago. Since then, airport and airline staff around the world have been trained and, until this incident, I felt confident that I would be treated with consideration and my dignity more-or-less preserved.

I want this man to be reprimanded, relevant procedures reviewed and passenger-facing staff retrained. @EasyJet has so far ignored me (I sent a survey response to the CEO the following day) but I have had an apology from @JerseyPorts, who are in touch with (the agent) @SwissportUK.

Wheelchair users do not like using unfamiliar substitutes – in extreme cases they can be dangerous – and, as far as practical, they should be avoided. But more importantly, in the 21st century, disabled passengers are entitled to expect a far better service than I received in my former home the other day.

… on Staycation!

I won’t pretend these visits were the result of my endless quest for new adventures. If Johnny had had his way, he would be spending the summer holed up right here, only venturing out on the hand-bike (along a well-worn trail) or with the dog in the boot. As for wearing a mask, I only went somewhere that required one last week. But as usual, Juanita Fajita had other ideas.

One day Jock, one day.

First of all, did I mention that my tall-ships sailing experience got binned? For the second time? The more this happens, the more I want to do it. A few domestic voyages are pencilled in for next summer. I never thought I would consider one more passage through the Dover Straits as an attractive holiday option. “Bridge Ops, further surface contact, green two zero steady bearing …”

So, with quarantine threatened, we made a few trips that didn’t require a passport.

Buscot Park is a National Trust stately home on the edge of the Cotswolds, and the Failey clan gathered there on a blazing August day to celebrate Linda’s (and her twin brother Ian’s) birthday. While the house was closed the gardens on their own made the visit worthwhile, and a shady picnic area offered welcome respite from the sun. That’s where I stayed, I must confess, so the rest is pure hearsay.

As a private home supported but not owned by the NT, accessibility does not reflect modern standards. Steps (with handrails, though) up to and within the main house and to several garden terraces restrict wheelchair users and indeed the guide recommends power assistance around the grounds. So you might be forgiven for concluding that a visit wasn’t worth your time and money (there is a separate charge to visit the gardens but a handful of NT membership cards took the hit).

There is an accessible route!

But there is a great deal for the horticulturalist (So Johnny) and art-lover to enjoy outside. Visit the website, I’m busy. While waiting in the shade for the main group, we plundered the tea-room’s stock of Calippos. On the downside, I could not tell who, if anybody, had wiped down the disabled loo before me. Someone could catch something.

Chidham, I think, from Bosham.

We drove to Bosham on the south coast to meet Deb and Nick. It’s a beautiful area, favoured by yotties and peppered with art galleries and tea-rooms. And flat. Lovely and flat. Walk/wheeling round the shallow inlet, we passed quaint old houses with gardens leading down to the sea. The path floods at every hight tide and a step or two are their only defence against the collapse of the world’s ice shelves. Not sure the one we saw For Sale represents the solid investment it once did.

With Deb and Nick

Then round to Chichester Marina for a late lunch at the Boat House. We sat in a shady veranda area, from where I could surreptitiously glance at the pretty girls in their summer dresses. Indulge an elderly gent; I meant no harm. With the Eat Out to Help Out discount in place, it was really good value too. Finally, another flat stroll (that’s a better word for what we do) to Birdham Pool.

A grand day out.

Because the West Sussex coastal area is so flat. there are quite a few accessible walks to enjoy. Download the guide here. We’ll write about some of them soon.

… into a lock-down cock-up!

My new wheelchair developed a fault. The manufacturer insisted on checking it — in Poland — and after months of hesitation I shipped it there, just in time for Europe to shut down. Now my old chair, after serving me well for fifteen years, is on its last ‘legs’. What’s a poor boy to do?

Johnny Sombrero’s Mustang

Soon after taking delivery of my new GTM Mustang wheelchair, at the beginning of 2019, I noticed that the right-hand front caster was spinning idly above the ground. Just a mil or so and, with me aboard, the problem went away. However, since I feel that having all four wheels touching the ground is not much to ask, I asked (dealer) Cyclone Mobility to investigate. The managing director’s swift reaction was, “We’ll pick the chair up and have a new one made.”

They did indeed pick it up but, a day later, mysteriously pronounced it fixed and sent it straight back. It wasn’t long before the problem reappeared. An engineer came out and fitted some washers but that also proved a temporary solution. Eventually Cyclone got in touch with Warsaw-based GTM Mobil to arrange a replacement frame, but they wanted to look at it first, in Poland.

I couldn’t understand why they could not accept the video evidence I had supplied, clearly indicating the problem. Why would they need it before making a replacement? Did they intend to put it back in the jig and twist it back into shape? Would that guarantee a lifetime of stress-free stability? I didn’t get it.

Over the next six months my relationship with Cyclone became strained. They took ages to respond to my enquiries and, rather than representing a dissatisfied customer against a supplier who was at fault, the MD  saw himself as a “man-in-the-middle” who should not take sides. A wheelchair user himself, he didn’t appear to ‘get’ how removing my primary mode of mobility would affect my life. He knew why I had ordered the chair in the first place.

After several false starts and, as we now know, with impeccable timing, I let it go. That very evening, sitting on the sofa with my old chair to one side, i discovered that one of the forks was twisted. Panicking, I grabbed the phone and sent Cyclone an email expressing my frustration, threatening legal action and God knows what else, if they didn’t send it right back. It wasn’t, I admit, my finest hour — I should at least have slept on it. And as Linda pointed out to me, several times, I shouldn’t have let it go at all.

Cyclone responded in a rather hurt manner and I found myself calling to apologise for my outburst. We agreed it should go after all and the MD promised that GTM would give it priority. Last I heard, GTM was running a skeleton operation in Warsaw, no doubt prioritising social-distancing instead of fixing my goddamm chair.

Will I ever see it again? Did I mention it cost two-and-a-half grand? Will GTM and/or Cyclone survive the shutdown? When will my old chair finally collapse? Will Johnny be reduced to bum-shuffling round Sombrero Towers like a street cripple?

Oddly, he is remarkably sanguine about that distinct possibility. After 35 years of this bollox, t’is but a small step. So to speak. But I don’t think much of the customer service.

… The SmartDrive (update)

I’m glad I invested in this kit. It gets me up slopes, it helps me walk the dog and keep up with grown-ups. It’s reliable and the lithium battery lasts long enough for me (the Bluetooth wristband controller, without which the whole thing is dead-weight, does not). The only real problem is, the thing has a life of its own.

My home is surrounded by a path of fake york-stone flags, laid when I were a lad and a lot more mobile. Most times I negotiate these safely but, every so often, I time it wrong and bounce off an edge. It’s the same with kerbs and unexpected stones. The front castors stop abruptly and so do I. But no matter the obstacle, unless you stop it by tapping the wristband, the SmartDrive will power on at the selected speed. It will soon overcome the clamp and push itself through the vertical to cut out in a facing forward position.

And then, basically, you’re shafted. The only way to reset the device, back to the facing aft condition, is to get out of the chair. If there’s a seat nearby it’s a 30-second job but if not, all you can do is shuffle your sorry ass to the ground. It takes but a moment to reset but then, of course, you have to get back in the chair, a manoeuvre that I find increasingly difficult in me old age.

Dramatic reconstruction

If you spend your life cruising through airport terminals and exhibition halls, you have nothing to worry about. But if you live in the real world, this can be a real issue. You need to keep the clamp tight but there is a limit to the torque you can apply with the Allen key supplied.

This condition can be avoided by coupling a FreeWheel to the front of the chair. It lifts the front casters off the ground and makes life, with and without a SmartDrive, a lot smoother. Leaning backwards helps as well.

Finally, it’s a good idea to turn the device off when you don’t need it. Several times I have patted the dog and immediately run him over.

… To nowhere

Surprisingly cold at 0400

It was shaping up so well. We climbed the gangway, signed on, made up our bunks and drew foul-weather clothing. Unexpectedly, Jock volunteered us for an 04-0600 harbour watch. But after breakfast the next day, we learned that the Trust had failed a safety audit and we weren’t going anywhere soon.

The ship systems were fine but the MCA found fault at Head Office. We were hoping to sail on Saturday but when this was extended to Monday, Jock and I (with plenty of experience of weekends stuck alongside) pulled the plug. We could no longer make Oban on time and would have to head straight for the less-salubrious port of Campbeltown.

It is such a shame. We were settling in with a great bunch of able-bodied and disabled crewmembers, plus volunteer watchleaders and permanent crew with exactly the right attitude. The weather was set fair. What could be better?

We were promised expenses and offered refunds or a substitute voyage. We will try again so friends who supported my own effort can rest assured their contributions will not be in vain. As we used to say, it’s just life in a blue suit; a shipmate told me she had sailed with the Trust 20 times and this had never happened before.

I note the Lord Nelson will spend much of next January and February sailing from Antigua. Just a thought …

… The SmartDrive MX2+

This battery-powered clip-on doo-hicky may not extend your mobility horizons, but it should make your existing ones easier to handle.

I have been struggling up the uneven slope to my office lately, and searching for a little oomph to avoid my shoulders becoming any more knackered thatn they already are. The choice was between a hand-bike attachment at the front of my wheelchair and a SmartDrive underneath.

This kit from Cyclone Mobility mounts to the chair front

The former option — several makes are on the market — effectively upgrades the chair into an electric trike. Another term for it could be mobility scooter. I make the comparison only because your hands move from the push-rims to handlebars and all the power then comes from the front wheel. You just steer it. I once tried out my Dad’s mobility scooter and froze half to death after half an hour excercising only my right thumb. That said, the combo does look and perform much better than a scooter. It also lifts the front castors of the ground so you can try it out OFF ROAD!

With a SmartDrive, your hands must stay in contact with the wheels, if only because the thing will push when you start it and only stop when you tell it to. If you come up against a stone or tree-root and fail to avoid it, stop or lift the front castors manually, it will keep on pushing until, in a worst-case secanario, it tips you onto the ground and runs you over. Your own chair. Oh the indignity. But at least the blood keeps flowing around (and potentially out of) the body.

Safely at the office door

You control a SmartDrive through a Fitbit-style wristband with a Bluetooth connection. This feaures an accelerometer that reacts to taps on the push rim. Two taps to go, one to stop accelerating and two more to stop. After a couple of near disasters pushing/driving up my uneven slope, I have the hang of it. It helps if you (counterintuitively) lean backwards. I will now trial it at the local beauty spot where I exercise the dog; if that works, which it should, everything else will be a bonus.

I will also use it in conjunction with my FreeWheel, which will get round the castor problem. That should make for quite a nifty combo. More later.

… to the Amalfi Coast.

The Vertical Coast, more like. L arranged this trip and, if I had seen in advance photos of towns like Positano, Maiori or (our base) Minori, I would have whinged like a sailor denied shore leave in Rio. Our flights were to Naples so I thought I had only Visuvius to worry about.

Imagine my surprise, then, as the autostrada dipped down between two cliffs and transformed itself into the first of numerous hairpin bends. Truth be told, it was somewhat hilly. How hilly was it? It was so hilly that, whenever the Croche Rossa ambulance sped past our hotel, sirens blaring, we would get the Doppler effect two or three times as it zig-zagged up or down the main street. In fact it wasn’t hilly at all. It was edge-of-the-cliffy.

This gangway was a tight squeeze for the chair

But we managed, as always. Our hotel had a decent accessible room. The boats linking many of the neighbouring towns were do-able, if you were prepared to be manhandled up and down the gangways. Many of the restaurants have outside seating at street level. Most of the village piazzas are at least on the level. And of course for every uphill, there’s a downhill.

Just don’t expect much in the way of lifts, ramps or loos. We depended on taxis for every journey, and even then they insisted on sending vans. Easy for the wheelchair, not so much for Andy. Linda’s informal scouting revealed two, count’em two, accessible loos along the entire coastline — one in Ravello (doubling as a storeroom) and another up several steep steps at the Blue Bar on Positano beach. As for ramps, the Villa Rufalo in Ravello boasts the steepest, longest one I have ever been expected to negotiate. Definitely a group effort required but, if you can muster the support, the gardens and the views are stunning.

A whole ‘nother challenge in Ravello

We ate well. Most meals started with an amuse-bouche, the food revolved around seafood and lemons, the coffee was wonderful and, to finish with, there was often a free tot of home-made limoncello. Orchards lined every road, many protected by netting and some of that, so we were told, concealing illegal building projects.

We were about 90 minutes from Pompeii and that is a sight to behold. Our visit concentrated on the structure of Roman society and the precarious nature of one’s position as patrician, pleb or what-not. Our guide led us from the Coliseum entrance, avoiding the smutty mosaics that had been the focus of my first visit, back in the day. We got in free, by the way.

Traffic calming, Roman style

So I guess the point of this entry is to encourage any fellow wheelchair user who might feel intimidated by the obvious obstacles lying in wait along this dramatic coast, to have no fear. We spend our entire bloody lives improvising so it would be a shame not to take it up just one more notch, if you want to experience some of the most spettacolare scenery Europe has to offer.

… the GTM Mustang!

Mustang

Mustang; my new mount.

It’s a wheelchair folks, not a wild horse, but as I decide whether to buy it, you can tell it’s the sort of chair Johnny ought to have. He was measured up for one the other day, the way one might be for a decent suit. But instead of polite enquiries about the number of cuff buttons or whether or not to go for pocket flaps, I was offered titanium push-rims (+ 200 quid) or red-leather upholstery (another 140). No to both of those. As long as I don’t get friction burns on my palms, I don’t mind. And frankly, the more nondescript the bloody thing, the better.

I calculate this will be my seventh chair in, what, 33 years of life as a paraplegic? I don’t forget noticing from my bed at Stoke Mandeville, one of a small stack of brand-new black/chrome government-issue devices, with HEALEY scrawled in black felt-tip on a brown tag. I remember feeling depressed for a while but what did I expect?

Quadra (640x480)

Quadra, a design classic

My second chair was a heavy blue Quickie (yes, really) Quadra, currently resident in my garage. Once I have replaced a missing spacer I shall donate it to a worthy cause.

No.3 was a red XLT (Extra-Light Titanium) that really was light; I sold it after shorter wheelbases became the norm. Four came from Bromakin, a supplier from Loughborough that for a while built its own and was run by folks who I preferred to my local bunch of sharks. It’s also titanium, unpainted, and I keep the frame as a spare.

Barrow1

Not so Quickie, these days.

And five, another Quickie, is now nearly knackered. Ten years of bouncing down kerbs and jamming castors into ruts have taken their toll. I also depend on it far more than I used to, I think it’s been through three sets of tyres (kevlar-lined so zero punctures), but several sets of tubes as said tyres are a bitch to put on. One stat I do know for sure is that, in 32 years of navigating the world in one of these chairs, I have rolled through exactly one pile of dog-poo.

I thought about replacing my Quickie with the Tigra but have decided that weight, or lack of it, is everything. By dispensing with the folding forks I can save at least 2kg and 600 notes. The Mustang fits the bill so if I can find the dosh, I may well go for it. I have gone for the unpainted look, since you ask.

Look at me, not the fucking chair.

… to Victoria, by Sikorsky

If you need to travel from the commercial centre of BC (Vancouver) to its administrative centre in Victoria, on Vancouver Island, you could catch a ferry. it’s a 95 minute journey. Trouble is, the ferry doesn’t leave from Vancouver and it doesn’t arrive in Victoria. Or, you could nip down to the West Waterfront and fly from there straight to Victoria’s harbour heliport. Point-to-point, 35 minutes. Works for me.

Helijet operates one of the few scheduled helicopter services in the world, and has done so since 1986. I believe it has depended on the Sikorsky S-76 for all that time and, bearing in mind that the aircraft fly all day and shut down after every flight, the better to load and unload passengers, the record speaks well of its reliability. Just so you know.

blog S76a

Johnny learns he can’t sit up front with the driver

We flew to Victoria in the morning. As a PLM (Passenger with Limited Mobility) I was loaded first and kept well away from the doors. Since I must have been the only passenger to have completed dunker training (albeit in the olden days), this affronted me somewhat. So I leaned over and noted the door-release routine.

Needless to say. the others never got to know what good hands they had been in.

20180810_125911Victoria appears more formal than its free-wheeling counterpart across the Georgia Strait. It boasts lots of statues and, in season, beautiful flower gardens bordering lush green parks. We hung around the elegant Empress Hotel until politely asked to leave; Juanita then visited the province’s parliament building while Johnny sat in the sunshine with a rug over his knees.

The Royal BC Museum is well worth a visit. We headed for the First Peoples gallery and walked through some really imaginative displays. Ceremonial masks and totem poles, and even some historic film-clips of early encounters with white settlers.

We wandered along the inner harbour wall, which is lined with plaques commemorating business, family and individual contributors to Victoria’s maritime heritage. Then, what with an extended lunch (we weren’t driving) and everything, it was soon time to head back to the heliport. Talk about scratching the surface.

Blog totem